the_coffee_shop: Old, thick book with a caption that says "I've been meaning to write" in brown letters. (joelle)
[personal profile] the_coffee_shop
Hi all!
Just saying I joined here... I'll probably be lurking more than anything, but I just wanted to introduce myself.
I'm Joelle... nice to meet you all. :)

I have severe obsessive-compulsive disorder and anxiety, as well as moderate paranoia. I also have chronic migraines.
Just today at work, I made a slight error--told someone some information over the phone that I wasn't supposed to, although it wasn't anything terribly private--and I spent the remainder of the afternoon convinced that I was going to be sued and put in prison for doing so. I'm still halfway believing that.

It gets frustrating, holding down a job with OCD and anxiety; for example, when I lock up the office in the evenings, I'm stuck checking and re-checking the door for ten minutes to be sure it's locked, and that's on a good day.

Oh well. At least I'm good for making sure all the pets are fed and appliances are turned off before leaving home, huh? :)
dollsandtea: Cartoon girl with cat ears, stylized self-portrait (Default)
[personal profile] dollsandtea
I never exactly know what to say in introductions, so I'll stick with the basic facts. I'm 29 and have been suffering from Major Depression for 19 years. I also have Generalized Anxiety Disorder (GAD) and Social Anxiety, there have also been some questions over how correct my diagnosis is and that I might have Bipolar rather than Major Depression.

being me )

Today is one of my bad days where even doing something as simple as writing this post becomes an exhausting task, so until next time, nice to meet you all and be well
serene: fuck cancer (fuck cancer)
[personal profile] serene
Hi, all.

I'm Serene, and I've been coming to terms over the past five years with increasing disability in my life. I've got chronic pain that no doctor takes seriously so far (still shopping for one who will), and I've recently been dealing with surgeries, radiation treatments, and hormonal treatments for thyroid cancer. In our family, which includes six adults and a teenager, most of us deal with some disability or other, so I'm fortunate to have a family where I can talk about my frustrations and my little triumphs, and no one looks at me like I'm crazy.

I also work at UC Berkeley in the Disabled Students' Program office, so my day-to-day life involves doing my best to make things easier for university students with disabilities.

I'm transitioning over to DreamWidth, and won't be renewing my paid LJ membership, so I plan to be here for the duration. Glad to meet all of you.
jeshyr: I'm disabled, not dead! (Disabled not dead!)
[personal profile] jeshyr
G'day all!

I'm Ricky, I'm 34 and I have ... umm ... something that might or might not be ME/CFS + EDS or might or might not be a primary mitochondrial disorder.
More details here... )

I'm head of the accessibility team here at Dreamwidth; that's a bunch of us who work at making the site more accessible for those with all kinds of access needs. If you want to read about that, help, or report accessibily issues with Dreamwidth, trot along to [site community profile] dw_accessibility for more information.

Great to see all the introductions! I'd love to read more :)
Ricky

Hi!

May. 19th, 2009 08:17 pm
bethany_lauren: Ivanova is not to be trifled with  (Ivanova)
[personal profile] bethany_lauren
I'm Bethany and I'm 22, almost 23, and in October, I will have had fibromyalgia for ten years. Read more... )
I just had my sixteenth anniversary of being diagnosed with severe allergies. I am allergic to most of plant life. The bushes, the flowers, the shrubs, the trees, the pollens, and ragweed and molds. Even grass.
I've also got Sensory Integration Disorder. Read more... )

So hi ya'll. Nice to meet ya!
iconoplast: A painted sign that reads "Hello World". (hello world)
[personal profile] iconoplast
Hello all! I'm iconoplast and I'll be your introductee this evening. I'm a week shy of 29, female, and I don't think quick lists of interests could ever sum up who I am so I usually skip them.

I thought [personal profile] ysobel had a lovely idea, so I too wrote an entry in my journal describing my syndrome. The quick summation is that it's Postural Orthostatic Tachycardia Syndrome (POTS for short), hyperadrenergic type. That basically means that my autonomic nervous system is failing and as such if I'm not on the correct medications I can dress myself, but that's about it. I was only diagnosed a few weeks ago and I'm still adjusting to the idea of having a diagnosis as well as a prognosis. I'm slowly learning what it's like to take care of myself again while trying to find something that alleviates the muscular pain while we find the right balance for the rest of the meds (and hopefully find one that gets rid of it since I'm told that's actually possible in this case).

I also have high functioning Asperger's and was born with a depressed immune system. In childhood I had migraines, asthma, and chronic bronchitis, but all three have faded as I've aged.
axelrod: (Default)
[personal profile] axelrod
Hey, everyone. Quick introductory post! 

I've been diagnosed with major depression and general anxiety disorder (though I have virtually no symptoms of anxiety these days, largely through my own efforts). I refer to myself as bipolar-esque, because I have 'up' moods (some more pleasant than others), but not genuine hypomanic or manic moods. I recently heard about borderline personality disorder, and I suspect I have that as well - it would explain a lot. I've suffered from mental illness for about as long as I can remember, though it got progressively worse until I finally had to face up to it about two and a half years ago. I've been slowly getting better since then.
Read more... )

Exile and Pride by Eli Clare is one of my favorite books - he does a great job imo with intersectionality, and he's a poet so it's a pleasure to read his very well researched book. I typed up some quotes when I read the book, let me know if you want me to post those here. I'm not quite sure if that's within posting guidelines, so I thought I'd ask.
recessional: a small blue-paisley teapot with a blue mug (Default)
[personal profile] recessional
Hi. I decided to do an intro post, too, because as the subject line implies, I am a lemming.

You can call me M. I found the community via [personal profile] staranise, and it seemed interesting enough to be worth following.

I suffer from major depression and PTSD. I am somewhere on the high end of the Aspergers' section of the Autism Spectrum Disorder. My sister is Autistic, as is one of my cousins. One of my cousins is dyslexic, another is ADHD, my other sister is ADD, my father is pretty much Aspergers' and my mother suffered from depression for much of her adult life. I spent my entire life up until the last three years with "I am the normal one, with no illnesses/disabilities" in my head as a self-identity thing, so I'm still getting used to "actually, you suffer from these other things as well."

I'm also asthmatic and get classic migraines, but these don't have as much impact on my life as I want to live it, so I often forget them until they actually rear their ugly heads.

I look forward to seeing where this community goes.
ysobel: (me)
[personal profile] ysobel
...since everyone else is doing it, and I am a lemming...

Hi! I'm [personal profile] ysobel, and I wrote up an entry in my journal explaining the condition I have (Fibrodysplasia Ossificans Progressiva, short summary version of which is that my body creates way too much bone, in or around skeletal muscle / tendons / etc, in ways that make me almost-completely immobile. Er, and there's also pain involved, which is so much fun, as a lot of you are probably aware.)

I also have depression, which isn't quite a disability in the same sense, but kind of is anyway.

*waves at y'all*
staranise: A star anise floating in a cup of mint tea (Default)
[personal profile] staranise
Hi, everybody.  I thought I'd do an intro post too.

I'm Lis; I'm a 22-year-old Canadian university student.  My goal is to be a psychotherapist; that comes pretty directly from having had depression since forever (it became undeniable when I was 11, but I probably had it years before that) and hanging out with a lot of non-neurotypical friends.

There are a lot of niggly things wrong with me.  I think the official list of physical symptoms is eight, but I can only name off about six at any given time, so we'll see how many I get in this post )

It's nice to meet everyone here, and I look forward to this community being awesome.

Intro Post

May. 16th, 2009 10:51 am
trouble: Sketch of Hermoine from Harry Potter with "Bookworms will rule the world (after we finish the background reading)" on it (Default)
[personal profile] trouble
My name is Anna, and I'm an activist for disability and accessibility rights in my city, adgitator of many on-line communities, and advocate for my husband, Don, who has Marfan's Syndrome. I'm also an historian who writes about the history of disability, currently focusing on education and charity work in nineteenth century Nova Scotia. I'm currently in the "temporarily non-disabled" category.

Under the cut is a paragraph about why I joined the community and a question about posting book reviews. )

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