May. 19th, 2009 08:17 pm
bethany_lauren: Ivanova is not to be trifled with  (Ivanova)
[personal profile] bethany_lauren posting in [community profile] no_pity
I'm Bethany and I'm 22, almost 23, and in October, I will have had fibromyalgia for ten years. Fibro is a "common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause." Taken from this site - NFA

I just had my sixteenth anniversary of being diagnosed with severe allergies. I am allergic to most of plant life. The bushes, the flowers, the shrubs, the trees, the pollens, and ragweed and molds. Even grass.
I've also got Sensory Integration Disorder. Sensory integration disorders are central nervous system disorders characterized by imbalance among the primary sensations of sight, hearing, touch, taste, or smell. these sort of dysfunctions can affect attention & arousal (hyperactivity or hypoactivity), movement, speech, balance, and auditory and visual perception. Basically what it means, is that I don't process sensory input the way that other people do. Because of that some stuff is harder for me to grasp than other stuff. For example, I have very little spacial concepts knowledge/reasoning. I don't always know where my body is in space, which is why I trip all the time or bang into things for no apparent reason. Also why learning how to ride a bike was so hard and why learning to drive took so long.

So hi ya'll. Nice to meet ya!

(no subject)

Date: 2009-05-20 03:18 am (UTC)
green: (Default)
From: [personal profile] green
Nice to meet you, too! My daughter was born with SID, too.

(no subject)

Date: 2009-05-20 03:29 am (UTC)
green: (Default)
From: [personal profile] green
*nod* My daughter went undiagnosed for awhile, and we couldn't figure out why she would get so scared in certain situations. Now we know she felt off balance and like she was going to fall. It was particularly hard to understand when she was a baby and we'd lay her on her back (the way they tell you to do) and she'd do nothing but scream.

Occupational therapy helped a lot, once we knew what was going on.

(no subject)

Date: 2009-05-20 08:13 am (UTC)
onceamy: A girl needs her chemicals. (Girl-and-Coffee-1)
From: [personal profile] onceamy
Oh, fibro at 13? That sucks --- even younger than me (started at 15, 17 now).

I suffer terrible (as in diagnosed severe like you) allergies too, so hopefully we can share avoidance tips!

I hope you enjoy your stay here, too, of course.

(no subject)

Date: 2009-05-20 12:33 pm (UTC)
onceamy: A girl needs her chemicals. (Girl-and-Coffee-1)
From: [personal profile] onceamy
Thanks for replying!

Because of the CFS on top, the number of things I'm allergic to has increased a bit: from just dust mites, certain animal hairs, dust particles, pollens, and aloe vera to include foodstuffs and chemicals---i.e. coffee (the bean itself, not the caffeine, as I can drink diet colas fine), MSG, food colourings, and the like. It's pretty easy to manage though with thought, label reading, and communication. I'm also badly affected on my skin by wood-fire smoke in the winter, which is unavoidable considering my location.

Heh, sorry for the long list, but you did ask!

(no subject)

Date: 2009-05-20 12:38 pm (UTC)
onceamy: A girl needs her chemicals. (Girl-and-Coffee-1)
From: [personal profile] onceamy
Oh, and the inheritance link is interesting: my maternal side of the family has a very long history of osteoarthritis, my brother has early spondylosis and I have the fibro! Never actually realised that before!


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