[personal profile] jazzyjj
Hello. I hope this comm is still active. As I was looking through the profile I noticed that it's been a long time since the last post. But anyway, I'd like to introduce myself. I'm still rather new to Dreamwidth but it's growing on me. I am Jake and I was born blind. I only have light perception. I have become quite interested in disability-rights issues, due in large part to having a disability myself. I'm pumped that Dreamwidth has these disability comms! Okay I guess that's it from me for the time being, as I've gotta go finish supper and start the dishes. Hopefully I'll not be the last post here.
sisyphus_rolling: (Default)
[personal profile] sisyphus_rolling
Anyone here have Seasonal Affective Disorder? I don't have it officially, but I want to learn more about it before I talk to my psychologist about it. Thanks!
jmtorres: (imagination)
[personal profile] jmtorres
So one of the accessibility issues recently discussed in Vividcon fandom was warnings on vids, and one item brought up as needing warnings for accessibility was epileptic seizure triggers, such as flashing lights and microcuts. I haven't been able to get a good answer for this from the googles, so I was wondering, does anyone here know (or know were to look for resources) what frequencies of flashing and/or shortness of clips are likely to be problems for viewers with epilepsy?

Thanks.
hilarytamar: a spray of cherry blossoms (Default)
[personal profile] hilarytamar
I've set up a new comm, [community profile] disabled_rage, for those times when you just don't want to put up with ableist crap anymore & need to rant about it. Currently membership is open and posting is unmoderated, since there's a lot of ableist crap out there and I want to make it as easy as possible to rant about it, but I've set up a poll a poll to get input in case people feel more comfortable knowing they're venting in private.

(cross-posted to several places; my apologies to those of you who see it more than once)
the_coffee_shop: Old, thick book with a caption that says "I've been meaning to write" in brown letters. (joelle)
[personal profile] the_coffee_shop
Hi all!
Just saying I joined here... I'll probably be lurking more than anything, but I just wanted to introduce myself.
I'm Joelle... nice to meet you all. :)

I have severe obsessive-compulsive disorder and anxiety, as well as moderate paranoia. I also have chronic migraines.
Just today at work, I made a slight error--told someone some information over the phone that I wasn't supposed to, although it wasn't anything terribly private--and I spent the remainder of the afternoon convinced that I was going to be sued and put in prison for doing so. I'm still halfway believing that.

It gets frustrating, holding down a job with OCD and anxiety; for example, when I lock up the office in the evenings, I'm stuck checking and re-checking the door for ten minutes to be sure it's locked, and that's on a good day.

Oh well. At least I'm good for making sure all the pets are fed and appliances are turned off before leaving home, huh? :)
axelrod: (Default)
[personal profile] axelrod
I have a question relating to employment.

I'm a mentally ill recent college grad* looking for a job. I suffer from major depression primarily. I didn't really interview for my current job and anyway when I got it I didn't understand that I was mentally ill, so this issue didn't come up at the time for me. My mental illness primarily effects me as a worker in that sometimes I have trouble coming in on time (sometimes due to insomnia, sometimes because it's hard to get out of bed and get going) and sometimes I'm too lethargic or restless to work well (frequent breaks, low productivity) and sometimes I'm very reserved/brusque.

My question is: at what point do I tell my hypothetical boss that I suffer from a chronic illness which effects my mood and energy level? And how do I tell them? Obviously not at the interview stage. I mainly want to be open about this at least to the person/people I answer to directly so they know I'm not slacking off, that I am in fact doing the best I can, that I'm not angry at them or have a bad attitude. I feel a certain amount of shame, still, about being mentally ill, about using it as my excuse when I can't keep my commitments - it's hard to shake, and it makes it much more difficult for me to figure out how to deal with this.

Does anyone have advice about how to come out to an employer as having an invisible disability? Thank you! 

Also, I don't know how to tag this ...

*Almost. I didn't finish my thesis for, as I will say at interviews, medical reasons. Which is perfectly true, but they don't need to know it's a chronic condition.
hilarytamar: "No Pity", in large bright letters.  (posts--no pity)
[personal profile] hilarytamar
DW has a new comm: [community profile] accessibility_fail. It's one of those comms we really wish we didn't need, but since we do, here it is.

From the profile:

"Have you ever been in an 'accessible' hotel room that had an half-inch-high curb at the threshhold? Ever been caught in a 22" wide wheelchair facing down a 20" door? Ever been assured that the allegedly-accessible route has 'just' one step?

"Take a picture. Then post it here, with where you were, what you noticed, and why that place fails at accessibility. (Filing ADA violation reports can be a community bonding activity!)

"Pictures aren't necessary, and whether or not you have a picture, describe the situation as completely as you can. (That way those with visual-based disabilities can share in the mocking of the fail as well.) And if you come across someplace that does it right, please also feel free to post accessibility wins.

"(All kinds of accessibility fail welcome: mobility-based, visual-based, physical-world, online-world, anything at all.)"
luludi: (dreamwidth: believe)
[personal profile] luludi
Hello. I am posting to ask for your help. I am not myself physically disabled. I am writing a paper regarding the use of service animals for autism, depression, and other psychiatric or psychological conditions. I would very much like to hear some perspectives from the group (positive or negative) because I would like to include that voice in my paper.

Recently, the Depression and Bi-Polar Support Alliance has asked the Department of Justice to review the language of the Americans with Disabilities Act regarding the use of service animals for psychiatric conditions (link: http://www.dbsalliance.org/site/PageServer?pagename=advocacy_081408_dog). I think this is an important issue because, while I am not disabled, I do suffer from a condition that causes chronic pain which can also lead to depression.

I would be very grateful for anything you have to offer on the subject, and I am particularly interested in your reaction as a physically disabled person to the use of service animals for psychiatric conditions, as well as the connection between a person's psychological health in relation to their physical disabilities. While I am in support of service animals being used for this purpose, I am also particularly interested in the opinions of the physically disabled to legislation being expanded to provide the same rights and protections for the psychologically disabled or impaired. I have done a great deal of research regarding the human-animal bond and the positive differences animals can make in the lives of all people. I am also interested in hearing from those who do use service animals for a physical disability and whether they feel the animal helps them in an emotional or psychological capacity as well. I would imagine, for instance, that a blind person who uses a dog as their "sight" would build a great deal of trust and love for the animal which is with them on a daily basis and affords them a freedom they might not otherwise enjoy. In addition, I would also be very interested in hearing from those who have psychological or psychiatric conditions and their opinions on whether animals provide a beneficial element in their lives. I would be very appreciative of any feedback, suggestions, critiques or opinions you have on the issue, as well as anything which you think I may be overlooking in terms of this issue. Once the paper is more formed, I would be happy to share it with everyone if you would like.

Thank you very much for taking the time to review this post, and in advance for anything you would like to add.

trouble: Man jumping with "Actions speak louder than icons" (Actions are LOVE! icon!)
[personal profile] trouble
USA, Canada and the EU attempt to kill treaty to protect blind people's access to written material

This will also affect Deaf people, and people with other reading-related difficulties.

The rest of the text is behind this cut )
dollsandtea: Cartoon girl with cat ears, stylized self-portrait (Default)
[personal profile] dollsandtea
I never exactly know what to say in introductions, so I'll stick with the basic facts. I'm 29 and have been suffering from Major Depression for 19 years. I also have Generalized Anxiety Disorder (GAD) and Social Anxiety, there have also been some questions over how correct my diagnosis is and that I might have Bipolar rather than Major Depression.

being me )

Today is one of my bad days where even doing something as simple as writing this post becomes an exhausting task, so until next time, nice to meet you all and be well
serene: fuck cancer (fuck cancer)
[personal profile] serene
[posted to my journal and to [community profile] no_pity]

In theory, I'm all about finding balance in my life (cf. my decision to work at a good part-time job I love, rather than taking "better" offers for full-time work). But then the balance shifts.

Every bad pain day I have makes my available energy and time and mental oomph a moving target. Having three in a row, as I have this weekend, makes me start feeling discouraged and wondering if it'll ever end. But then I'll have a really good week, and I'll feel bullet-proof, and like I could do anything, and I'll start a magazine or something so that all my time is spoken for, well into the future.

The thing to discover is this: How much can I commit to doing in advance, and not risk the crash of having to drop it all if the pain flares up, or if the hormone pills make my legs feel like big slabs of tender meat?

I won't lie and say I'm not discouraged right this moment, but most of the time, I feel pretty good about my choices around this stuff. Most of the time, I let people know that my time and energy are more variable than they used to be, and I have people in my life who get it, and who don't expect me to do more than I can do. But there's so much I *want* to do, and it's hard for me to remember, on a good day, when nothing hurts, that next week, *everything* might hurt, and I might need to spend the whole weekend popping aspirin and sitting in the recliner.

For those of you who deal with varying levels of energy/pain/wellness, what do you do to keep that stuff on a relatively even keel?
serene: fuck cancer (fuck cancer)
[personal profile] serene
Hi, all.

I'm Serene, and I've been coming to terms over the past five years with increasing disability in my life. I've got chronic pain that no doctor takes seriously so far (still shopping for one who will), and I've recently been dealing with surgeries, radiation treatments, and hormonal treatments for thyroid cancer. In our family, which includes six adults and a teenager, most of us deal with some disability or other, so I'm fortunate to have a family where I can talk about my frustrations and my little triumphs, and no one looks at me like I'm crazy.

I also work at UC Berkeley in the Disabled Students' Program office, so my day-to-day life involves doing my best to make things easier for university students with disabilities.

I'm transitioning over to DreamWidth, and won't be renewing my paid LJ membership, so I plan to be here for the duration. Glad to meet all of you.
jeshyr: I'm disabled, not dead! (Disabled not dead!)
[personal profile] jeshyr
G'day all!

I'm Ricky, I'm 34 and I have ... umm ... something that might or might not be ME/CFS + EDS or might or might not be a primary mitochondrial disorder.
More details here... )

I'm head of the accessibility team here at Dreamwidth; that's a bunch of us who work at making the site more accessible for those with all kinds of access needs. If you want to read about that, help, or report accessibily issues with Dreamwidth, trot along to [site community profile] dw_accessibility for more information.

Great to see all the introductions! I'd love to read more :)
Ricky

Hi!

May. 19th, 2009 08:17 pm
bethany_lauren: Ivanova is not to be trifled with  (Ivanova)
[personal profile] bethany_lauren
I'm Bethany and I'm 22, almost 23, and in October, I will have had fibromyalgia for ten years. Read more... )
I just had my sixteenth anniversary of being diagnosed with severe allergies. I am allergic to most of plant life. The bushes, the flowers, the shrubs, the trees, the pollens, and ragweed and molds. Even grass.
I've also got Sensory Integration Disorder. Read more... )

So hi ya'll. Nice to meet ya!
iconoplast: A painted sign that reads "Hello World". (hello world)
[personal profile] iconoplast
Hello all! I'm iconoplast and I'll be your introductee this evening. I'm a week shy of 29, female, and I don't think quick lists of interests could ever sum up who I am so I usually skip them.

I thought [personal profile] ysobel had a lovely idea, so I too wrote an entry in my journal describing my syndrome. The quick summation is that it's Postural Orthostatic Tachycardia Syndrome (POTS for short), hyperadrenergic type. That basically means that my autonomic nervous system is failing and as such if I'm not on the correct medications I can dress myself, but that's about it. I was only diagnosed a few weeks ago and I'm still adjusting to the idea of having a diagnosis as well as a prognosis. I'm slowly learning what it's like to take care of myself again while trying to find something that alleviates the muscular pain while we find the right balance for the rest of the meds (and hopefully find one that gets rid of it since I'm told that's actually possible in this case).

I also have high functioning Asperger's and was born with a depressed immune system. In childhood I had migraines, asthma, and chronic bronchitis, but all three have faded as I've aged.
axelrod: (Default)
[personal profile] axelrod
Hey, everyone. Quick introductory post! 

I've been diagnosed with major depression and general anxiety disorder (though I have virtually no symptoms of anxiety these days, largely through my own efforts). I refer to myself as bipolar-esque, because I have 'up' moods (some more pleasant than others), but not genuine hypomanic or manic moods. I recently heard about borderline personality disorder, and I suspect I have that as well - it would explain a lot. I've suffered from mental illness for about as long as I can remember, though it got progressively worse until I finally had to face up to it about two and a half years ago. I've been slowly getting better since then.
Read more... )

Exile and Pride by Eli Clare is one of my favorite books - he does a great job imo with intersectionality, and he's a poet so it's a pleasure to read his very well researched book. I typed up some quotes when I read the book, let me know if you want me to post those here. I'm not quite sure if that's within posting guidelines, so I thought I'd ask.
recessional: a photo image of feet in sparkly red shoes (Default)
[personal profile] recessional
Hi. I decided to do an intro post, too, because as the subject line implies, I am a lemming.

You can call me M. I found the community via [personal profile] staranise, and it seemed interesting enough to be worth following.

I suffer from major depression and PTSD. I am somewhere on the high end of the Aspergers' section of the Autism Spectrum Disorder. My sister is Autistic, as is one of my cousins. One of my cousins is dyslexic, another is ADHD, my other sister is ADD, my father is pretty much Aspergers' and my mother suffered from depression for much of her adult life. I spent my entire life up until the last three years with "I am the normal one, with no illnesses/disabilities" in my head as a self-identity thing, so I'm still getting used to "actually, you suffer from these other things as well."

I'm also asthmatic and get classic migraines, but these don't have as much impact on my life as I want to live it, so I often forget them until they actually rear their ugly heads.

I look forward to seeing where this community goes.
ysobel: (me)
[personal profile] ysobel
...since everyone else is doing it, and I am a lemming...

Hi! I'm [personal profile] ysobel, and I wrote up an entry in my journal explaining the condition I have (Fibrodysplasia Ossificans Progressiva, short summary version of which is that my body creates way too much bone, in or around skeletal muscle / tendons / etc, in ways that make me almost-completely immobile. Er, and there's also pain involved, which is so much fun, as a lot of you are probably aware.)

I also have depression, which isn't quite a disability in the same sense, but kind of is anyway.

*waves at y'all*
staranise: A star anise floating in a cup of mint tea (Default)
[personal profile] staranise
Hi, everybody.  I thought I'd do an intro post too.

I'm Lis; I'm a 22-year-old Canadian university student.  My goal is to be a psychotherapist; that comes pretty directly from having had depression since forever (it became undeniable when I was 11, but I probably had it years before that) and hanging out with a lot of non-neurotypical friends.

There are a lot of niggly things wrong with me.  I think the official list of physical symptoms is eight, but I can only name off about six at any given time, so we'll see how many I get in this post )

It's nice to meet everyone here, and I look forward to this community being awesome.

Intro Post

May. 16th, 2009 10:51 am
trouble: Sketch of Hermoine from Harry Potter with "Bookworms will rule the world (after we finish the background reading)" on it (Default)
[personal profile] trouble
My name is Anna, and I'm an activist for disability and accessibility rights in my city, adgitator of many on-line communities, and advocate for my husband, Don, who has Marfan's Syndrome. I'm also an historian who writes about the history of disability, currently focusing on education and charity work in nineteenth century Nova Scotia. I'm currently in the "temporarily non-disabled" category.

Under the cut is a paragraph about why I joined the community and a question about posting book reviews. )